tag:blogger.com,1999:blog-594775389766417262.post8751362813999800852..comments2024-03-03T08:51:33.507+00:00Comments on EMLWY: Celebrities with endometriosisEMLWYhttp://www.blogger.com/profile/07114100884457234972noreply@blogger.comBlogger23125tag:blogger.com,1999:blog-594775389766417262.post-58915286222022476082016-11-07T17:51:23.785+00:002016-11-07T17:51:23.785+00:00That is great! I am organising a charity ball in s...That is great! I am organising a charity ball in support of Endometriosis and I want to invite a celebrity so this has been great help! The website is www.endoball.co.uk for anyone else interestedTanya baradhttp://www.endoball.co.uknoreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-37939066356736392252016-06-30T13:05:01.326+01:002016-06-30T13:05:01.326+01:00I wonder how much time off work they have had to h...I wonder how much time off work they have had to have. Amazing they can carry on a career as well as have this debilitating condition. They must have really supportive people around them.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-86837366374980264662016-06-30T00:47:52.936+01:002016-06-30T00:47:52.936+01:00I had debilitating periods for 10 years after turn...I had debilitating periods for 10 years after turning 40 (fortunately had two children prior), one laparoscopy and ablation after diagnosis of endo and adenomyosis, and recently had to have a hysterectomy as it got so bad. Significantly disrupted my life having to cancel everything for 2-3 days each month. Amazing to see how many women suffer from it, and yet where is the research? I suspect soy was a contributor for me, perhaps stress as well - women lead such stressful lives trying to juggle work, family etc. This really needs to be researched. Thanks for helping to raise awareness.Anonymoushttps://www.blogger.com/profile/01231643660194026895noreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-88987032425680709072016-05-24T13:18:04.675+01:002016-05-24T13:18:04.675+01:00Thank you for your comment and letting me know abo...Thank you for your comment and letting me know about the photo error - I've updated it now! :) S.EMLWYhttps://www.blogger.com/profile/07114100884457234972noreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-74724221470658801352016-05-11T06:37:02.688+01:002016-05-11T06:37:02.688+01:00Facing op number 3 in 3 years...do you have to do ...Facing op number 3 in 3 years...do you have to do this yearly!?! So tired of it. I eat healthy, exercise and try to live a normal life ...nothing seems to help. Given up on the thought of children. One miscarriage and 7 years of coming to terms with this battle. Its comforting to read you're not alone and others understand. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-36732215920180880492016-02-26T11:11:45.323+00:002016-02-26T11:11:45.323+00:00Thanks for sharingThanks for sharingAnnahttp://salem.manipalankur.com/our-service.phpnoreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-6174932911011661192015-12-02T16:30:55.170+00:002015-12-02T16:30:55.170+00:00It's surprising to see that so many celebritie...It's surprising to see that so many celebrities suffer from this awful condition, thanks for sharing your list! Accountants London Ladyhttp://www.carbonaccountancy.co.uknoreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-2576251276511956732015-11-18T06:25:13.859+00:002015-11-18T06:25:13.859+00:00Although I didn't have children due to a hyste...Although I didn't have children due to a hysterectomy for pain. These women are inspiring as they have all had battles with this underestimated and misunderstood illness. Ty. a j Nortonhttps://www.blogger.com/profile/07054304549839541481noreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-30349740552169133972015-10-30T10:48:49.522+00:002015-10-30T10:48:49.522+00:00Hi!!! its good to see many women came up with solu...Hi!!! its good to see many women came up with solution congratulation:):):) lisahttp://mangalore.manipalankur.com/our-service.phpnoreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-15323821689880526992015-03-02T06:13:28.806+00:002015-03-02T06:13:28.806+00:00Lena Dunham has it too! She wrote about it in her ...Lena Dunham has it too! She wrote about it in her book, "Not That Kind of Girl".Jenni Rempelhttps://www.blogger.com/profile/12587847841278462510noreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-22391895586852066132014-12-08T08:45:51.290+00:002014-12-08T08:45:51.290+00:00It really feels bad to hear that all these female ...It really feels bad to hear that all these <a href="http://www.ranker.com/crowdranked-list/most-stylish-female-celebrities" rel="nofollow">female celebrity</a> are suffering from such a critical disease. I didn’t know that my favorite American model Karen Duffy also has this disease. I am feeling very sad for her.Anonymoushttps://www.blogger.com/profile/06148587980224382481noreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-33546014170313396642014-10-13T10:20:23.390+01:002014-10-13T10:20:23.390+01:00I guess some of the sexiest celebrities have also ...I guess some of the <a href="http://www.ranker.com/crowdranked-list/the-beautiful-people-the-hottest-celebrities-of-all-time" rel="nofollow">sexiest celebrities</a> have also had their battles with endometriosis. It’s heartening to see that some of them went on to have children disputing its link with infertility.<br />Anonymoushttps://www.blogger.com/profile/17343366808204009603noreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-17519002415437022522014-07-10T16:47:04.786+01:002014-07-10T16:47:04.786+01:00Very sadly , its become apparent to me , since wri...Very sadly , its become apparent to me , since writing my experience ( I last saw my surgeon for a general appointment at the endometriosis centre, as you expect they have things connected to that such as pain management clinics ect , which in honesty I have never attended so far but I have been "in this issue " if that is the way I could describe my life since I was 38 ..when I was hospitalized ..I was very sick indeed without correct meds to deal with issue weeks of two kinds of tablets of two week courses three times day for 8 weeks I may of died women do of PID you can pass away very quickly , I said PID that's the hospital words the "general term we use .." I was actually too ill to be operated on then and it was long time after till had to pay as the problem was heading the same way of another PID ..how would you term very ulcerated bowel I don't know and internal bleeding ..and infection on top of that of all the tubes ..the rest of me basically ill ..Sadly it is my belief since typing my story I have been bullied to the point that I have considered suicide ..and its affected my family relationship with certain member of my family ( im not married its not a partner ) its broken my heart that 46 year of love and affection for a person has been affected by things ive said here ...it was NOT a sexually transmitted disease and nor could it ever be ..you cannot catch it im still very sad ive been isolated in trying to find someone else who had recto vaginal but I am aware from speaking to my surgeon of course he knows others that hes opertated on with this and informed me its difficult for partner or husnds of women who have been left with a *stoma * or colostomy bag ..as I said I m I consider lucky one ..( even to be alive ) I have a choice to remove my story but why should I I cared about women suffering I know how it is for them , nobody knows more than me ive done all I can in life to help or offer to help even offering body parts would you like my ovaries or this and that or do what you want or free to operate I often feel like just body nothing more to be experimented on ...I ask you please don't bully people think about what you say and do it can leave people like me feeling no reason to go on ..that's a shame ..I feel I have a lot to offer the world and I don't have any ignorant or uncaring ways ...it seems I was misunderstood I don't feel anyone ever will ..bow can I wipe out my 46 years I ask you how ??? I paid the price in many ways and as I said being alone was one of them ..but id hoped not forever the only person I had in life I think I have lost forever ..im sorry for that endometriosis was not my fault and nor is it yours I have been bullied ....Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-56602598666381789542014-05-21T15:04:46.482+01:002014-05-21T15:04:46.482+01:00The Lady you have posted as Nike Oshinowo is not N...The Lady you have posted as Nike Oshinowo is not Nike. Please open the link below to see her.<br />Great writeup on Endometriosis. Alot of women donot know or have any idea of the symptoms here in Nigeria and i am sure in Africa as a whole.<br />It is time to shed more light and my eyes have been open to it.<br />Thanks.Anonymoushttps://www.blogger.com/profile/06353402020833254782noreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-16032391753166730852014-05-03T19:38:22.554+01:002014-05-03T19:38:22.554+01:00Hello. I am a single women age 46 , yet to find th...Hello. I am a single women age 46 , yet to find the right partner. I have lived on my own for more than 25 years , love children and people and have an interest in art and love the work of Tracey Emin . I have Recto Vaginal endometriosis , I don't meet many people with this type of endometriosis which really is classed , in terms of surgery , (that not to say other forms of endo is not painful or debilitating ) you can end up and sadly some women do , thankfully I do not have a stoma . I was born with endometriosis and had my symptoms , that I recall, but prob been before that at age nine with epilepsy and placed on sodium valproate as a child im still using the drug today age 46 ..so al my life but I had epilepsy from age 9 to 20 so I was diagnosed at my first operation at age 42 nearly , here is some hope for all the women . At age 38 if you can imagine the endometriosis had built up for 42 years on my bowel I was in terrible pain collapsing reg and limping down the right leg , I had a life threatening condition of PID the endo became infected and my bowel was all inflamed and ulcerated , the ulcers came off the bowel and down the vaginal wall all the nerves ..my periods that were very reg all my life 28 days nearly stopped or stopped I was given 8 weeks PID meds not nice meds to take in order to save it ..it did work and they came back to every 23 days even more reg than before can you believe ..which they have remained at as I type at this age of 46 , I even tried 7 months of mirena iud and had contractions for 7 month , the mirena was put in at the bowel surgery called total excision of endometriosis so it was delicate surgery and fitting that item was really quite difficult for me me coping , I later went on to try prostap injection for 7 months age 45 as I have recto vaginal and uterine fibroids . Now I just want to give you all hope you do know that removing a uterus for recto vaginal person it wont make any difference , t will carry on growing on the bowel as if you have a uterus ..so to summery I have two ovaires and a uterus . I have just been in hospital went on my 46 th birthday can you belive with 10 months of kidney stones on top of recto vaginal ..I still have periods every 23 days and ovulate for those women with a uterus and even if you have had ovary removed you can still have children ..there is hope ..what happened to me should not of happened I was single or not with anyone to have child so they didn't find it till at 42 but they did every test including CT at 38 and couldn't see it till I paid for op to have a look and paid for another op for excision , in all costing prob more than 8 thousand for a women that wasn't working parents had to help ..but still I still have recto but I can work at many things people don't thing I could do and am able to have intimate relationship WITHOUT PAIN AND HAVE A GOOD HIGH SEX DRIVE .. its important for women to look at the positive side , however as you can imagine , I do get bullied for my age how am in in body shape and for having periods at 46 that's doing well , nobody will ever say that , they say there is no reason why I carnt go till after the menopause with uterus as it works but just gave me this terrible burdon which I do suffer and have to have treatment for ..there is hope as ive just given , many of these women if not all are fertile women with a horrible side effect that sometimes every drug out there cannot fix it , even as young child I had endo in my brain that's only just come to light nobody talks about endometriosis related epilepsy before a period or at that time ..my art college place had to be given up and my education suffered .. if you check out Emin International You can buy signed art in poster form for as little as 30.00 and that's wonderful be proud of Tracey and what shes done for women and for Hospices donating her art to Pilgrims Hospice in Kent where my brother is the Chaplain of the hospice Revd Fr Stewart .my brother has seen his sister suffer most of her life .CatherineAge46noreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-71385869217086721422014-03-17T22:28:45.627+00:002014-03-17T22:28:45.627+00:00Hi,
I don't have much time to write, but what ...Hi,<br />I don't have much time to write, but what helped me A LOT with the endo symptoms is a very healthy diet. Eating organic, avoid animal fats (means also milk fats) and excluding processed foods and sugars (see Mediteranean diet), and basing all meals on fruits, vegetables, nuts, whole grains, legumes... even some celebrity ladies stated above used a healthy diet as a healing plan. It is much easier than one would think!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-55226608661315844312013-12-29T18:55:02.411+00:002013-12-29T18:55:02.411+00:00People are struggling all around. Great to see peo...People are struggling all around. Great to see people who haven't give up and manage to pull through. Inspirational how people fight to live.Michellehttp://www.cherryaffairs.comnoreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-8557113406965360022013-12-29T03:23:14.098+00:002013-12-29T03:23:14.098+00:00I have been struggling with this disease since 197...I have been struggling with this disease since 1978. I am 52years old just dad surgery number 9 and still in pain. I remember a few years back Daisy Fuentes was supposed to be the main spokesperson for the endo assn. She backed out afraid it would jeopardize her career. Ladies you have the power of the media and the funds to make a difference. Stop thinking about yourselves and your images. How about the young girls the next generations. It is hereditary and I pray for your daughters that it isn't passed on. Get out there and make a difference. There are millions of women and young girls suffering. I wished many of times in my life I had the power of the media and money to do something. I have done the best I can to reach out and shout out awareness. Support groups endo walks lectures speeches crisis calls etc. LADIES DO SOMETHING NOW!!!!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-42420697896437517982013-12-10T04:48:54.935+00:002013-12-10T04:48:54.935+00:00So happy to see the advancement in awareness on en...So happy to see the advancement in awareness on endometriosis! All of the above named celebrities that have suffered from this disease are strong, beautiful, influential women; it's great to have examples of how such beautiful women can fight a not so pretty disease. We fully support the awareness of this disease and are pleased to see the talks spread on the issue. It's time to advocate awareness, education and support of something that has such little light shed on it. Whether you purchase a shirt to help spread awareness and spark conversation or not, we're happy to see this community grow and spread the word. Love & Positivity to all our EndoSisters! - The Nomoendo Foundation www.nomoendo.org Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-23918923451611520862013-10-11T20:41:05.951+01:002013-10-11T20:41:05.951+01:00I'm 19 and I've just been diagnosed with e...I'm 19 and I've just been diagnosed with endometriosis, I've been feeling really down and have had anxiety since the diagnosis, and though I am not currently trying for a baby, I've been really sad that I may be difficult for me in the future.. There are some really inspirational women on here and I this site has made this difficult discovery a little easier for me <br />XAnonymoushttps://www.blogger.com/profile/12080956120247130548noreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-20387421750344792302013-09-10T16:26:40.823+01:002013-09-10T16:26:40.823+01:00There are a lot of very influential women on this ...There are a lot of very influential women on this list. I do hope they take time to help spread awareness, whether it be about getting tested or what treatment options are available, so women can get the help they need.Aurora Diag @ Aurora DXhttp://www.auroradx.com/pathology-services/dermdx/noreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-64847165266793185292013-08-03T08:34:51.336+01:002013-08-03T08:34:51.336+01:00Some very famous women here suffering from this de...Some very famous women here suffering from this debilatating condition, i wish some would step forward and really help highlight the symptoms sufferers have to go through on a daily basis and make people more aware of Endomitriosis, especialy in the uk where even countless GPs know very little about the condition, the ignorance and lack of knowledge is sometimes one of the worst contributing factors of it cAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-594775389766417262.post-7118219776422486102013-04-25T16:03:51.675+01:002013-04-25T16:03:51.675+01:00Some really inspirational women here. Helps to kno...Some really inspirational women here. Helps to know that so much can be achieved in the face of chronic illness. Amy @ The Tide That Lefthttps://www.blogger.com/profile/08563442390740639521noreply@blogger.com