Sunday, 4 December 2011

Back to where it all began

Image courtesy of http://www.mandylogy.com/1254-am/
I saw the Prof. on Monday. I wanted so badly for him to say they had found a new amazing treatment that would cure my endometriosis. Or at least something that would actually work. Unfortunately, my visit didn't really conclude in the way I had hoped.

I went in and explained to him all of the problems I was having with the Mirena coil: How it was making me feel sick. How I had lost my libido. How bad my acne was again. How my moods were like a roller coaster. How bad my pain was. The response I got: "You're a complicated case".

He explained there weren't many options left. I can't have surgery because the scar tissue just makes my pain worse. I've tried the pill and the coil. I've tried hormone treatments. I've even tried for experimental treatments but since my bones are so weak I can't have that.

He now wants me to go back on to the contraceptive pill while I still have my coil in and see how that goes for the next 4 months. I asked him for another bone density scan since my last one was 2 years ago and he has agreed to that. I've been taking calcium supplements and have improved my diet since I found out about my osteopenia so I'm hoping this will have improved my bone density so I can try some new treatments. I'm hoping anyway.

But the worst thing he said is that in 4 months time, I'll be back on add-back therapy. My worst fear.

What hope is there if even my "specialist" hasn't a clue what to do with me.

I've tried all these things before and look where they've got me. Back here. Back to the beginning.

I feel like giving up.

S.
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